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Neurogenetics Clinic

The Neurogenetics clinic is founded on the belief that understanding the mechanism and causes of disease can lead to effective treatment. Our Neurogenetics Clinic is a one-day outpatient clinic that evaluates individuals and their family members who have a known or suspected inherited/familial neurological disorder.

Some of the disorders seen include: inherited neuropathies, myopathies, muscular dystrophies, and spastic paraplegias. Genetic testing is often offered for diagnostics and research purposes.

If you are a patient with a known or suspected, inherited neurological disorder, interested in participating in our diagnostic and observational study, please contact:

Alice B. Schindler, MS, CGC
Genetic Counselor/Research Coordinator
NIH/NINDS/Neurogenetics Branch
10 Center Drive 2B-51B
Bethesda, MD 20892-1671
Fax: 301-480-0056


Patient Recruitment and Public Liaison Office toll-free at: 
TTY: 1-866-411-1010

Neurogenetics Clinic Care Providers


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 Kenneth Fishbeck, M.D.
Chief & Clinic Director

 Craig Blackstone, M.D., Ph.D.
Senior Investigator

 Ami Mankodi, M.D.
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 Christopher Grunseich, M.D.
Staff Clinician
Derek Narendra, M.D., Ph.D.
Assistant Clinical Investigator
Mary Kay Floeter, M.D., Ph.D
Senior Clinician

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 Sonja Scholz, M.D., Ph.D.
   Assistant Clinical Investigator
 Bryan Traynor, M.D., Ph.D.,

Genetic Counselor and Clinic Contact:
 Alice B. Schindler, MS, CGC

Research Nurse:
 Angela D. Kokkinis, RN, BSN

Patient Care Coordinator
 Elizabeth Hartnett