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Neurogenetics Clinic

The Neurogenetics clinic is founded on the belief that understanding the mechanism and causes of disease can lead to effective treatment. Our Neurogenetics Clinic is a one-day outpatient clinic that evaluates individuals and their family members who have a known or suspected inherited/familial neurological disorder.

Some of the disorders seen include: inherited neuropathies, myopathies, muscular dystrophies, and spastic paraplegias. Genetic testing is often offered for diagnostics and research purposes.

If you are a patient with a known or suspected, inherited neurological disorder, interested in participating in our diagnostic and observational study, please contact:

Alice B. Schindler, MS, CGC
Genetic Counselor/Research Coordinator
NIH/NINDS/Neurogenetics Branch
10 Center Drive 10/5s-219
Bethesda, MD 20892-1671
Email: schindlerab@mail.nih.gov
Fax: 301-480-0056

OR


Patient Recruitment and Public Liaison Office toll-free at: 
1-800-411-1222
TTY: 1-866-411-1010

Neurogenetics Clinic Care Providers

Physicians


   
 Kennith Fishbeck, M.D.
Chief & Clinic Director

 Craig Blackstone, M.D., Ph.D.
Senior Investigator

 Ami Mankodi, M.D.
Investigator
     
 Christopher Grunseich, M.D.
Senior Clinical Fellow
Derek Narendra, M.D., Ph.D.
Michael Ward, M.D., Ph.D.
Assistant Clinical Investigator

     
 Sonja Scholz, M.D., Ph.D.
   Assistant Clinical Investigator
 Bryan Tryanor, M.D., Ph.D.,
Investigator
 Ricardo Roda

     
 Mary Kay Floeter, M.D., Ph.D
Senior Clinician
   



Genetic Counselor and Clinic Contact:

Alice Schindler, MS, CGC



Patient Care Coordinator

Elizabeth Hartnett