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Neurogenetics Clinic

The Neurogenetics clinic is founded on the belief that understanding the mechanism and causes of disease can lead to effective treatment. Our Neurogenetics Clinic is a one-day outpatient clinic that evaluates individuals and their family members who have a known or suspected inherited/familial neurological disorder.

Some of the disorders seen include: inherited neuropathies, myopathies, muscular dystrophies, and spastic paraplegias. Genetic testing is often offered for diagnostics and research purposes.

If you are a patient with a known or suspected, inherited neurological disorder, interested in participating in our diagnostic and observational study, please contact:

Alice B. Schindler, MS, CGC
Genetic Counselor/Research Coordinator
NIH/NINDS/Neurogenetics Branch
10 Center Drive 10/5s-219
Bethesda, MD 20892-1671
Fax: 301-480-0056


Patient Recruitment and Public Liaison Office toll-free at: 
TTY: 1-866-411-1010

Neurogenetics Clinic Care Providers


 Kennith Fishbeck, M.D.
Chief & Clinic Director

 Craig Blackstone, M.D., Ph.D.
Senior Investigator

 Ami Mankodi, M.D.
 Christopher Grunseich, M.D.
Senior Clinical Fellow
Derek Narendra, M.D., Ph.D.
Michael Ward, M.D., Ph.D.
Assistant Clinical Investigator
 Sonja Scholz, M.D., Ph.D.
   Assistant Clinical Investigator
 Bryan Tryanor, M.D., Ph.D.,
 Mary Kay Floeter, M.D., Ph.D
Senior Clinician

 Brian Trummer
Clinical Fellow


Genetic Counselor and Clinic Contact:

           Alice Schindler, MS, CGC

Patient Care Coordinator

                Elizabeth Hartnett