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Neurogenetics Clinic

The Neurogenetics clinic is founded on the belief that understanding the mechanism and causes of disease can lead to effective treatment. Our Neurogenetics Clinic is a one-day outpatient clinic that evaluates individuals and their family members who have a known or suspected inherited/familial neurological disorder.

Some of the disorders seen include: inherited neuropathies, myopathies, muscular dystrophies, and spastic paraplegias. Genetic testing is often offered for diagnostics and research purposes.

If you are a patient with a known or suspected, inherited neurological disorder, interested in participating in our diagnostic and observational study, please contact:

Alice B. Schindler, MS, CGC
Genetic Counselor/Research Coordinator
NIH/NINDS/Neurogenetics Branch
10 Center Drive 2B-51B
Bethesda, MD 20892-1671
Email: schindlerab@mail.nih.gov
Fax: 301-480-0056

OR

Patient Recruitment and Public Liaison Office toll-free at: 
1-800-411-1222
TTY: 1-866-411-1010

Neurogenetics Clinic Care Providers

Physicians

     
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 Kenneth Fishbeck, M.D.
Chief & Clinic Director

 Craig Blackstone, M.D., Ph.D.
Senior Investigator

 Ami Mankodi, M.D.
Investigator
     
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 Christopher Grunseich, M.D.
Staff Clinician
Derek Narendra, M.D., Ph.D.
Assistant Clinical Investigator
Michael Ward, M.D., Ph.D.
  Investigator
     
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 Sonja Scholz, M.D., Ph.D.
   Assistant Clinical Investigator
 Bryan Traynor, M.D., Ph.D.,
Investigator
 Mary Kay Floeter, M.D., Ph.D
Senior Clinician

     
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 Brian Trummer, MD, PhD
Clinical Fellow

   


Genetic Counselor and Clinic Contact:
 
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 Alice B. Schindler, MS, CGC

      
Research Nurse:
 
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 Angela D. Kokkinis, RN, BSN



Patient Care Coordinator
 
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 Elizabeth Hartnett